UCLA

Aims

The aim is to explore perceived facilitators of and barriers to HIV self-management for HIV-positive Chinese women.

Background

Little is known about self-management among HIV-positive Chinese women in China. Understanding the experiences of this population is needed to promote self-management.

Methods

27 in-depth interviews were conducted in Beijing and Shanghai. Facilitators included families being supportive after disclosure, patients learning how to live with HIV, antiretroviral therapy (ART) adherence, and rediscovering the meaning of life. Several barriers were also identified, including lack of support, stigma, fatigue, and financial difficulty.

Results

HIV disclosure is essential to obtaining necessary support. Ironically, disclosing to family members who stigmatize the disease may invite unwelcome responses. Helping HIV-positive women to decrease self-stigma and develop an effective way to disclose, if they choose to, is important.

Conclusion

Future interventions should focus on disclosure strategies development and self-management to prevent isolation, enhance social support, and decrease self-stigma.