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PROMIS Scores for Children with Unilateral Congenital Below Elbow Deficiency (UCBED)
Abstract
• Patients with unilateral congenital below elbow deficiency (UCBED) are born with a unilateral transverse deficiency at the level of the forearm.
• Based on previous studies, these patients have been shown to have milder than expected disability and their impairment is not reduced by using a prosthesis.
• This work resulted in changes in practice regarding prosthetic prescription for children with UCBED. However, it did not address the social stigma caused by this impairment, nor did it provide actionable information to improve the functional deficits that these children experience.
• Although PROMIS discerns UE function in other congenital arm differences, results for children with UCBED are not known.
• This study evaluates their responses to PROMIS Short Form Upper Extremity Function (UEF), Mobility, and Peer Relationships (PR) domains.
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