Our social media activity data is a valuable source of information about our preferences, psychological and social processes. However, collecting such private data, including messages, for scientific research is at an early stage (Ueberwasser & Stark, 2017), which is natural given privacy issues involved (Bemmann & Buschek, 2020). Our study is geared towards: i) making the process of sharing personal data more ethical, consensual, informed and comfortable; ii) identifying profiles of participants willing to share these data. 293 students of both technical and non-technical background completed an online questionnaire designed to identify the relationship between willingness to share the data and factors such as: 1) kinds of data; 2) method of data processing; 3) purpose of data gathering and use; 4) demographics of participants. Qualitative and quantitative analyses revealed the categories of participants’ concerns and preferences regarding the form of anonymization conditional on the subjects’ profile and their technical skills.

This paper presents transdisciplinary research on laryngectomy and a methodological stance to broaden research paradigms for the cognitive sciences. Studying daily experiences of people communicating without biological larynx in an interactive context, we put special emphasis on methodology combining engaged epistemology with ethnographic fieldwork. Our results made evident i) the role of anatomical and physiological adaptations in shaping communication and social relations, ii) the existence of multimodal and context-dependent alternative strategies of conversation, iii) the crucial role of participants’ agency. The dialogue between epistemologically engaged cognitive science and ethnographic fieldwork allowed us to remain open to novel interpretations of the communicative situations and led to unexpected observations. Results of this study point to the importance of integrating qualitative methodologies within research on cognition, and may prove useful for guiding therapeutic interventions and novel technological designs.